I am definitely better in warm weather. But I live at 2100 meters and have to deal with cold much of the year. I dress in layers, have very warm socks and boots and hats, and if I'm going to be out for long I wear the air-activated heat wraps on my neck or back to stay warmer.

Since this is something you will deal with the rest of your life, it's definitely worth considering a move to a warmer climate.

Jan

Type of Myotonia: Thomsen's

Country: US

Hi Tom:

While most people with myotonia that I have heard from on this subject say that cold aggravates their myotonia, a small number of people have said that heat aggravates their myotonia, though I think most of the people who said heat made their myotonia worse tended to have some form of periodic paralysis.

Cold tends to make my myotonia worse. In fact I have dislocated things before because my muscles got so tense in the cold that they've popped things out of place. Heat makes the weakness worse.

Type of Myotonia: Becker

Country: USA

Hi Tom

The same is to me: At about 32° Celsius I can move normally. No pain, no cramp, no stiffness.
But I do live in Switzerland :-( So sometimes I take a hot shower to enjoy that feeling of being healthy.

it is a dream of mine to live in a hot country, but there is everywhere aircondition and that would spoil the positiv effect of the heat.

Stephany

Type of Myotonia: unknown

Country: Switzerland

Hey Tom,
In my experience, heat does help but only through the form of showers and heating pads. Whenever i go on holiday or whenever it's summer time, my muscles go to pot and i become lethargic and sore. Although, i do seem to be able to move easier. This seems a good question which i think i'm going to talk to my specialist about.
from Paige
(Beckers)

Type of Myotonia: becker

Country: UK