Return to Website

Myotonia Congenita Forum


This forum has been closed for comments.  You can still search archived messages.


Visit  the Non-Dystrophic Myotonias  Facebook Group

Forum: Myotonia Congenita Forum
Start a New Topic 
View Entire Thread
Re: Medication

Jan, I noticed you didn't mention Oxcarbazepine (Trileptal). My 6 year old daughter has been taking that since she was diagnosed at 4 weeks old, and it has made a marked improvement on her condition. It is also a sodium channel blocker typically used to treat seizure disorders. While it doesn't completely stop her from cramping, it really lowers the amount she has on a daily basis. And, in the few times she's been too sick to keep her pills down, I've seen a huge jump in her cramps. This has also happened when we have forgotten a dose.

Do you have any experience with this drug? My daughter's neurologist prescribed it since she was so very young and it has very little side effects.

Country: USA

Re: Medication - by Jan (moderator) - Sep 18, 2014 9:57am
Get your own FREE Forum today! 
Report Content ·  · Free Guestbooks   Free Web Tools   Free Web Hosting   Cheap Domains 
Powered by Bravenet