Return to Website

Myotonia Congenita Forum


This forum has been closed for comments.  You can still search archived messages.


Visit  the Non-Dystrophic Myotonias  Facebook Group

Myotonia Congenita Forum
Start a New Topic 
View Entire Thread
Re: I need to have a hip relpacement!

Nina, I had responded to your message last week and for some reason it didn't show up on the forum.

On my website there is an anesthesia protocol:
Anethesia Protocol for MC

Also this is a link to the article "Coping with Anesthesia" mentioned in the PDF:
MDA Quest: Coping with Anesthesia

Many people in my family and many on the forum have used the protocol for surgery and had no complications.

As far as muscles being cut, we don't have any problem with wound healing unless there is another condition an addition to MC which might affect that (like diabetes). But I'm with you, I would avoid it if at all possible just because it will make recovery so much faster. And as cut muscles are healing, they may have more myotonia because of the natural response to pain.


Type of Myotonia: Thomsen's

Country: US

Re: I need to have a hip relpacement!

Thanks for responding Jan!
I have used the info from the MDA on anesthesia in the past. I will copy the info from this forum for this surgery. Thanks for the info I will feel better not having to much muscle destruction. Nina

Type of Myotonia: MC Becker's

Country: USA