My 5 year old daughter was diagnosed about a year ago. We also chose not to do meds for the same reasons you gave. I agree with Jan about the importance of staying positive and not letting them feel sorry for themselves! She is the arm wrestling champ in our house :). We notice she has a harder time when the weather changes for winter. Being nervous also makes her stiff. She loves the movie Frozen, so when she gets stiff she calls out "frozen"!:) There is so much they can do just by learning to warm up. I know its overwhelming at first, but hang in there! We remind her that God made her special just the way she is, and He does not make mistakes.

Country: USA

Did your daughter have any speech issues?

Type of Myotonia: Beckers

Country: Australia