Jessica, glad you checked in! It was hard for me to keep up with three kids, but somehow we made it through :-)
If you want to email me a copy of your test results I can look up the mutations. There have been cases of spontaneous mutations, but it's very rare. Did your parents have DNA testing or an EMG? There are some mutations that can be associated with both dominant and recessive myotonia.
If you haven't checked out the Facebook page (the link is above) you might want to post on there, too. It isn't just for myotonia congenita, but you'll find lots of empathy and you can show your husband the posts so hopefully he'll understand better the daily challenges.