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Myotonia Congenita Forum


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Myotonia Congenita Forum
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Hi Jan, I am new to the forum, could you tell me if I am ok to be on this forum or is there a separate one for Paramyotonia Congenita.....

Regards Pam

Type of Myotonia: Paramyotonia congenita

Country: UK

Re: Hi

Pam, there's a group called "Myotonias" on Facebook which covers the various types, and there's also one called "Fighting Hyperkalemic Periodic Paralysis" which is specific for that type.

You're welcome to post here, also.


Type of Myotonia: Thomsen's

Country: US