Just a reminder to please read the forum rules before posting. This is a family-friendly forum and as such I occasionally have to delete posts that violate the terms of use.
If you would like to discuss topics that not allowed here, please check out the Facebook page for myotonias (linked above). They also have a private group you can join if you message the moderator. The page is for all types of myotonia, not just myotonia congentia.